Family Support

Our Family Support Program is designed not only for children receiving palliative care but also for their families and the professionals who care for them. Through our Psychosocial Care Team (PCT)— funded by the Comprehensive Care Program for People with Advanced Illnesses of Fundación “la Caixa” — we offer tailored psychological, social, and spiritual support to meet each family’s unique needs, ensuring they are accompanied with dignity, empathy, and strength throughout the journey.

Psychological Support

We help families cope with the emotional impact of illness, from the moment of diagnosis through the progression of the disease — and, when necessary, the farewell. Our personalized care supports both children and their loved ones in navigating this complex process.
We also provide support for healthcare professionals, helping prevent emotional burnout and strengthening their capacity to accompany families with sensitivity and resilience. Psychological care is a vital part of ensuring holistic well-being in pediatric palliative care.

Social Support

Em Fundação porque Ao vivo , we guide families through the challenges of daily life brought on by illness: family reorganization, care planning, housing adaptations, conflict resolution, community integration, rights awareness, available social resources, and end-of-life planning. Our social work is grounded in ethical principles and values such as dignity, respect, self-determination, equal opportunity, and social justice — ensuring every family can make informed decisions and face the process with confidence and peace of mind.

Spiritual Support

We offer children, families, and professionals spiritual and existential carethroughout the illness and at the end of life. This support is not tied to any specific religion, but rather respects each person’s beliefs, values, and spiritual needs.
Our aim is to offer comfort, help families find meaning in suffering, and promote inner peace. We provide space for reflection, grief, and acceptance — always in an atmosphere of respect and dignity.

Bereavement Support

Em Fundação porque Ao vivo we walk alongside families in their grief, helping them navigate the pain, process the loss, and adapt to a new reality. We approach bereavement care through psychological, social, and spiritual lenses, offering tools to manage grief in a healthy way that respects each family’s pace and personal experience.Through support groups and personalized care, we encourage emotional expression, normalize the grieving process, and help prevent long-term psychological complications.

Peer Support Group

Friday Café

A monthly therapeutic-social gathering for families with children in palliative care.

It’s a safe and welcoming space to share experiences, express emotions, and reflect on the role of caregiving.

Through mutual support, active listening, and empathy, families build community, practice self-care, and gain tools to face daily challenges.

Caregiver School

An online education and support space for families of children with palliative needs, cared for by the UAIPP at Hospital Niño Jesús..

Led by pediatric palliative care experts, sessions cover key topics like breathing, nutrition, hygiene, and home medication administration.

Beyond training, the school fosters emotional connection and peer support — creating a space where knowledge, experience, and care go hand in hand.

Bereavement Group

A space for families who are navigating similar experiences to connect and support one another.

These gatherings allow for the expression of emotions, reduce isolation, and create deep bonds through shared understanding. Families share strategies, resources, and encouragement — discovering strength in solidarity and learning through each other’s journeys.

By sharing experiences, strategies and resources, they are also learning spaces where families discover new skills and find mutual support.

Peer Support Group

A therapeutic group where parents and relatives can share their grief, receive emotional support, and learn coping strategies.

Group therapy helps normalize mourning, prevent psychological complications, and build mutual support networks — offering a safe space to reconstruct meaning and move forward with compassion and strength.

Ajude-nos a mudar vidas!

Em porque Ao vivo , trabalhamos para melhorar a vida das crianças que não podem ser curadas e a das suas famílias.

Mas não podemos fazê-lo sozinhos. A sua ajuda é fundamental para que mais crianças com: Doenças incuráveis recebem a atenção que merecem. Doe, partilhe ou envolva-se e faça parte da mudança.

Juntos, podemos dar vida à sua vida.